You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Adams-Oliver syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Adams-Oliver syndrome hub →Adams-Oliver syndrome is a rare condition. Also known as AOS, Aplasia cutis congenita with distal limb anomalies, Aplasia cutis congenita with terminal transverse limb defects, Congenital scalp defects with distal limb anomalies, Congenital scalp defects with distal limb reduction anomalies. Tomeko brings together the specialists, research, clinical trials, treatments and community for Adams-Oliver syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:974 · OMIM 100300, 614219, 614814 · ICD-10 Q87.2 · GARD 0005739
Start by learning the basics from an authoritative source, find a specialist or center that sees Adams-Oliver syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Adams-Oliver syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Adams-Oliver syndrome from ClinicalTrials.gov on the hub.