You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Acrocardiofacial syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Acrocardiofacial syndrome hub →Acrocardiofacial syndrome is a rare condition. Also known as ACFS, CCGE syndrome, Cleft palate-cardiac defect-genital anomalies-ectrodactyly syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Acrocardiofacial syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2008 · OMIM 600460 · ICD-10 Q87.8 · GARD 0001167
Start by learning the basics from an authoritative source, find a specialist or center that sees Acrocardiofacial syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Acrocardiofacial syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Acrocardiofacial syndrome from ClinicalTrials.gov on the hub.