You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Acquired polycythemia vera, look for clinical trials, and connect with others living with it — all in one place.
Open the full Acquired polycythemia vera hub →Acquired polycythemia vera is a rare condition. Also known as Acquired primary erythrocytosis, Osler-Vaquez disease, PV, Polycythemia rubra vera, Vaquez disease. Tomeko brings together the specialists, research, clinical trials, treatments and community for Acquired polycythemia vera so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:729 · OMIM 263300 · ICD-10 D45 · GARD 0007422
Start by learning the basics from an authoritative source, find a specialist or center that sees Acquired polycythemia vera, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Acquired polycythemia vera, filtered to your area.
Tomeko shows live, recruiting studies for Acquired polycythemia vera from ClinicalTrials.gov on the hub.