You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Acquired partial lipodystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Acquired partial lipodystrophy hub →Acquired partial lipodystrophy is a rare condition. Also known as Barraquer-Simons syndrome, Progressive cephalothoracic lipodystrophy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Acquired partial lipodystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79087 · OMIM 608709 · ICD-10 E88.1 · GARD 0010509
Start by learning the basics from an authoritative source, find a specialist or center that sees Acquired partial lipodystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Acquired partial lipodystrophy, filtered to your area.
Tomeko shows live, recruiting studies for Acquired partial lipodystrophy from ClinicalTrials.gov on the hub.