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6q terminal deletion syndrome

Just diagnosed with 6q terminal deletion syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees 6q terminal deletion syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full 6q terminal deletion syndrome hub →

Overview

6q terminal deletion syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for 6q terminal deletion syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:75857 · ICD-10 Q93.5 · GARD 0018931

Find care for 6q terminal deletion syndrome

Authoritative references for 6q terminal deletion syndrome

Common questions

I was just diagnosed with 6q terminal deletion syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees 6q terminal deletion syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for 6q terminal deletion syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat 6q terminal deletion syndrome, filtered to your area.

Are there clinical trials for 6q terminal deletion syndrome?

Tomeko shows live, recruiting studies for 6q terminal deletion syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com