You are not alone. Here is where to start: learn the basics, find a specialist or center that sees 3p- syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full 3p- syndrome hub →3p- syndrome is a rare condition. Also known as 3p deletion syndrome, 3p- syndrome, Distal monosomy 3p, Monosomy 3pter, Telomeric monosomy 3p. Tomeko brings together the specialists, research, clinical trials, treatments and community for 3p- syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1620 · OMIM 613792 · ICD-10 Q87.8 · GARD 0003750
Start by learning the basics from an authoritative source, find a specialist or center that sees 3p- syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat 3p- syndrome, filtered to your area.
Tomeko shows live, recruiting studies for 3p- syndrome from ClinicalTrials.gov on the hub.