You are not alone. Here is where to start: learn the basics, find a specialist or center that sees 3MC syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full 3MC syndrome hub →3MC syndrome is a rare condition. Also known as Craniofacial-ulnar-renal syndrome, Malpuech-Michels-Mingarelli-Carnevale syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for 3MC syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:293843 · OMIM 248340, 257920, 265050 · ICD-10 Q87.8 · GARD 0001118
Start by learning the basics from an authoritative source, find a specialist or center that sees 3MC syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat 3MC syndrome, filtered to your area.
Tomeko shows live, recruiting studies for 3MC syndrome from ClinicalTrials.gov on the hub.